Educational Activities

1-11 of 11 Activities for Rare Diseases
Launch Date

Dengue Disease Update: What Do U.S. Clinicians Need to Know

In the first activity of this CME Outfitters Snack series, expert faculty will provide learners with the opportunity to grow their knowledge and understanding of the clinical manifestations, transmission, and exposure risks of dengue disease.


Global Perspectives on Diagnosis and Management of Childhood Epilepsy Disorders: Focus on Dravet, Lennox-Gastaut, and Tuberous Sclerosis Complex

Please join expert faculty in this recorded CMEO webcast as they discuss topics including early diagnosis, patient/caregiver QoL, team-based care, the role of pharmaceutical cannabinoid (CBD) in treatment, and regulatory guidelines. Through this discussion learners will become acquainted with improved tactics to diagnose and treat early-life seizures.


Addressing the Unmet Needs of Patients with Acute Hepatic Porphyria

In this activity, experts in AHP provide practical and patient-centered guidance for optimizing screening, diagnosis, and treatment.


Diagnosing EGPA: Recognizing Signs and Symptoms of the Disease

During this 30-minute CMEO Snack, Drs. Wechsler and Dua will identify best practices and current guidelines for the clinical evaluation and differential diagnosis of EGPA. Using a case presentation to frame the discussion, faculty will explain the differential diagnosis of EGPA as well as how to integrate diagnostic methods and interpret results.


Dismantling Disparities in Primary Immunodeficiency Care: Building Blocks to Equity

Expert faculty will engage the audience in the development of improved skills in identifying the signs and symptoms of PI to reduce diagnostic delays, emphasize the importance of implementing consistent, guideline-directed treatment plans for all patients, and advise on the importance of effective patient-clinician communication and education.


Adult Considerations in Spinal Muscular Atrophy: Building Clinician and Patient Medical Teams

In this educational webcast, expert faculty will discuss treatment needs of adult patients with SMA and the unique challenges and experiences of those patients transitioning from pediatric to adult care.


The Latest Update on Metachromatic Leukodystrophy: Screening, Diagnosis, and Emerging Treatments to Improve Quality of Life of Patients

During this 90-minute enduring material, expert panelists will discuss biomarkers that identify patients at the pre-symptomatic phase of the disease and share knowledge about caring for patients with MLD.


Accounting for the Impact of EGPA on Patient Quality of Life

During this 30-minute CMEO Snack, Dr. Gordon will join Dr. Michael Wechsler, a national expert in EGPA. They will discuss how EGPA impacts patient quality of life and how clinicians can better detect and manage hidden symptoms of disease.


Eosinophils, Cytokines, and Clinical Manifestations of EGPA

During this CMEO Snack, Drs. Wechsler and Akuthota will use 3-D models to discuss the pathophysiology and clinical course of EGPA, including eosinophilic manifestations of the disease and the effect of anti-IL-5 therapy on eosinophil activity in EGPA.


EGPA Management: Integrating Targeted Therapies to Optimize Outcomes

During this 30-minute CMEO Snack, Drs. Wechsler and Seo will discuss how to integrate EGPA treatments, including IL-5 targeted therapies, based on current treatment guidelines and patient-specific factors.