Patients living with Primary Immunodeficiency disorders (PID) face challenges that impact nearly every facet of daily life.  Understanding what PIDs are, deciphering diagnoses, and knowing what to expect during treatment planning are key to maintaining and improving quality of life for those affected by PID.
In this hub, you’ll find up-to-date information on PID, including educational videos, animations, fact sheets and other resources you can use to become your own best advocate and improve your quality of life.
Note: PIDs are also abbreviated as PI or PIDD and are used interchangeably throughout the literature.
CME Activities

A Multidisciplinary Approach to the Diagnosis and Optimal Management of Primary Immunodeficiency: The Latest Evidence and Best Practices

Participate NowPrimary immunodeficiency disorders (PIDs) are a group of genetic disorders that affect development and function in the immune system. PIDs can leave patients vulnerable to frequent, severe, and unusual infections, and are associated with significant morbidity; patients with PIDs are twice as likely to be hospitalized and have significantly longer hospital stays. This CME Outfitters on demand webcast is a case-based activity featuring expert faculty addressing the diagnosis and management of PIDs, as well as strategies for raising PID awareness and education.
Patient Resources

A guide on PIDs for patients and caregivers from the Immune Deficiency Foundation

Patient FAQs & Resources - Primary Immunodeficiency (PI)

Shared Decision Making

Dr. Mark Ballow talks about strategies for patients and their caregivers to improve communication with their doctors and healthcare teams.

Whiteboard Animation: Primary Immunodeficiency Disorders

  PID Whiteboard:  An animated guide for patients and caregivers on what PIs are, and what to expect from clinical visits during the diagnostic phase and treatment planning.