Patients living with Primary Immunodeficiency disorders (PID) face challenges that impact nearly every facet of daily life. Understanding what PIDs are, deciphering diagnoses, and knowing what to expect during treatment planning are key to maintaining and improving quality of life for those affected by PID.
In this hub, you’ll find up-to-date information on PID, including educational videos, animations, fact sheets and other resources you can use to become your own best advocate and improve your quality of life.
Note: PIDs are also abbreviated as PI or PIDD and are used interchangeably throughout the literature.
- Diagnostic and clinical care guidelines from the IDF
- Use and interpretation of diagnostic vaccination in PI from the AAAAI
- Practice parameter for the diagnosis and management of PID from the AAAAI/American College of Allergy, Asthma, and Immunology (ACAAI)
- Guideline on immunoglobulin therapy from the American Academy of Allergy, Asthma & Immunology (AAAAI)
- A guide for nurses on immunoglobulin therapy from the Immune Deficiency Foundation
Resources for Patients
- Health-Related Quality of Life in Patients With CVID Under Different Schedules of Immunoglobulin Administration: Prospective Multicenter Study
- Human Inborn Errors of Immunity: 2019 Update on the Classification from the International Union of Immunological Societies Expert Committee
- Newborn Screening for Severe Combined Immunodeficiency in the United States: Lessons Learned
- Personalized Therapy: Immunoglobulin Replacement for Antibody Deficiency