Welcome to the Rare Blood Disorders Patient Education Hub

Living with a rare blood disorder can feel overwhelming, but no one should face it alone. The Rare Blood Diseases Hub is here for patients, families, and caregivers, offering clear, reliable information when it’s needed most. From easy-to-understand health resources to guidance shaped by medical experts, this Hub helps you make sense of complex treatment options. Our goal is simple: to empower you to feel confident, ask the right questions, and work closely with your care team to achieve the best possible health outcomes.