Developmental and epileptic encephalopathies (DEEs) make up a diverse range of conditions that generally present with epileptic seizures and electroencephalogram (EEG) abnormalities. DEEs significantly impact children and adults living with the condition, as well as their caregivers. Patients and caregivers …
Developmental and epileptic encephalopathies (DEEs) make up a diverse range of conditions that generally present with significant epileptic seizures and electroencephalogram (EEG) abnormalities. DEEs can significantly impact children and adults living with the condition, as well as caregivers. Patients within …
Chronic inflammatory demyelinating polyneuropathy (CIDP) is an autoimmune, neuro-muscular condition impacting the myelin that insulates and protects peripheral nerves causing mobility and sensory impairment. Standard therapies for CIPD have been recommended for decades, however, there are many unmet needs related …
Health inequities in the diagnosis, treatment, and outcomes of gastrointestinal disorders significantly impact racial, ethnic, and immigrant populations. Patients born outside the U.S. are less likely to be diagnosed with inflammatory bowel disease (IBD) before age 16 and often face …
Cytomegalovirus (CMV) remains a major concern in both solid organ transplantation (SOT) and hematopoietic stem cell transplant (HSCT), primarily due to challenges related to treatment selection and monitoring, management of drug-related adverse events, and resistant/refractory disease. To minimize the impact …
New and emerging therapies for hemophilia are transforming clinical pathways in patient care. Such therapies include extended half-life products, non-factor/rebalancing therapies, and even gene therapies. But while this expanding armamentarium is a triumph in the evolution of hemophilia prophylaxis and …
People with mild or moderate hemophilia may struggle to get prophylactic treatment because their disease severity classification does not always match their bleeding symptoms. Additionally, racial and ethnic minority groups with hemophilia often face systemic and socioeconomic circumstances that prevent …
Cytomegalovirus (CMV) is a condition with high seroprevalence in the U.S. population and remains a primary concern in solid organ transplants, particularly allogeneic hematopoietic stem cell transplants (HSCTs) and kidney transplants. Pharmacists are an integral part of the team-based care …
