Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care

Faculty

Bethany Thomas, DNP
Moderator
Epilepsy Nurse Practitioner
Hospital of the University of Pennsylvania
Philadelphia, PA
Jennifer Griffin
Director of Family Support
Lennox-Gastaut Syndrome (LGS) Foundation
San Diego, CA

Statement of Need

The transition from pediatric to adult care for patients with Lennox-Gastaut syndrome (LGS) is often hindered by fragmented planning and a lack of personalized support. As young adult patients move from home-based care to group homes, assisted living, or long-term care facilities, an absence of coordinated transition models to guide them and their caregivers can lead to confusion, delays, and diminished quality of life. To ensure a successful future for patients with LGS as they transition into adulthood, caregivers must be aware of the differences between adult and pediatric care and how best to collaborate with the adult care team.

In this CME Outfitters live webcast, an expert health care professional and an experienced LGS caregiver will discuss the intricacies of adult care for LGS, including the key differences between pediatric and adult care in LGS as well as best practices for collaboration with the adult care team in the management of LGS.

Learning Objectives

At the conclusion of this activity, learners will be able to better:

  • Identify the key differences between pediatric and adult care in LGS
  • Discuss best practices for collaboration with the adult care team in the management of your child’s LGS

Financial Support

This program is supported by an independent medical education grant from Jazz Pharmaceuticals.

Target Audience

Caregivers of patients with LGS

Credit Information

Jointly Accredited Provider

In support of improving patient care, this activity has been planned and implemented by Boston University Chobanian & Avedisian School of Medicine and CME Outfitters, LLC. Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Disclosure Declaration

It is the policy of CME Outfitters, LLC, to ensure independence, balance, objectivity, and scientific rigor and integrity in all of their CE activities. Faculty must disclose to the participants any relationships with commercial companies whose products or devices may be mentioned in faculty presentations, or with the commercial supporter of this CE activity. CME Outfitters, LLC, has evaluated, identified, and mitigated any potential conflicts of interest through a rigorous content validation procedure, use of evidence-based data/research, and a multidisciplinary peer review process. The following information is for participant information only. It is not assumed that these relationships will have a negative impact on the presentations.

Faculty

Dr. Thomas reports the following financial relationships:

Advisory Board: Jazz Pharmaceuticals, Inc.; Neurelis, Inc.; and SK Life Science, Inc.

Consultant: Jazz Pharmaceuticals, Inc. and SK Life Science, Inc.; and Xenon Pharmaceuticals Inc.

Speakers Bureau: Jazz Pharmaceuticals, Inc.; Neurelis, Inc.; and SK Life Science, Inc.

Ms. Griffin reports no financial relationships to disclose.

Planners

Alison Li, MPH reports no financial relationships to disclose.

Natalie Sanfratello, MPH, CHCP reports no financial relationships to disclose.

The following individuals have no financial relationships to disclose:

Jeffrey Helfand, DO (Peer Reviewer)
Shirley Michelle Franks, MSN, APRN, FNP-BC (Peer Reviewer)
Laurie M. Douglass, MD (Steering Committee)
Ika Noviawaty, MD (Steering Committee)
Keshia Pitt, PhD (Planning Committee)
Felicia Oyedepo, MD (Planning Committee)
Scott J. Hershman, MD, FACEHP, CHCP (Planning Committee)
Sandra Caballero, PharmD (Planning Committee)
Sharon Tordoff (Planning Committee)

THESE MATERIALS AND ALL OTHER MATERIALS PROVIDED IN CONJUNCTION WITH CONTINUING EDUCATION ACTIVITIES ARE INTENDED SOLELY FOR PURPOSES OF SUPPLEMENTING CONTINUING EDUCATION PROGRAMS FOR QUALIFIED HEALTH CARE PROFESSIONALS. ANYONE USING THE MATERIALS ASSUMES FULL RESPONSIBILITY AND ALL RISK FOR THEIR APPROPRIATE USE. TRUSTEES OF BOSTON UNIVERSITY MAKES NO WARRANTIES OR REPRESENTATIONS WHATSOEVER REGARDING THE ACCURACY, COMPLETENESS, CURRENTNESS, NONINFRINGEMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE OF THE MATERIALS. IN NO EVENT WILL TRUSTEES OF BOSTON UNIVERSITY BE LIABLE TO ANYONE FOR ANY DECISION MADE OR ACTION TAKEN IN RELIANCE ON THE MATERIALS. IN NO EVENT SHOULD THE INFORMATION IN THE MATERIALS BE USED AS A SUBSTITUTE FOR PROFESSIONAL CARE. IN NO EVENT SHOULD INFORMATION IN THE MATERIALS REGARDING LAWS, REGULATIONS, OR LEGAL LIABILITY BE CONSIDERED LEGAL ADVICE OR USED AS A SUBSTITUTE FOR CONSULTING WITH AN ATTORNEY.

*All identified conflicts of interest have been mitigated.

Unlabeled Use Disclosure
Faculty of this CME/CE activity may include discussions of products or devices that are not currently labeled for use by the FDA. The faculty have been informed of their responsibility to disclose to the audience if they will be discussing off-label or investigational uses (any uses not approved by the FDA) of products or devices. CME Outfitters, LLC, the faculty, planners, and reviewers do not endorse the use of any product outside of the FDA labeled indications. Medical professionals should not utilize the procedures, products, or diagnosis techniques discussed during this activity without evaluation of their patient for contraindications or dangers of use.

Questions about this activity?

Call us at 877.CME.PROS (877.263.7767).

BU00-WC-093-082825-43

Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
Event Date: 08/28/2025 at 06:30 pm EDT