Blog Category:

Addressing Unmet Needs in Retinal Disease: Pairing Therapeutic Advances with Personalized Care

Retinal disease includes a wide array of conditions affecting the retina that, if not detected and treated early, can significantly impair quality of life, independence, and mobility while increasing the risk of accidental injury. These conditions also impose a substantial …

Culturally Respectful Care: Engaging Family Systems and Managing Unique Social Drivers of Health

Culturally respectful care starts at the very beginning of life, shaped by the rich lived experiences, traditions, and values that influence how children and families interact with the healthcare system. Every family brings unique circumstances, and clinicians and multidisciplinary teams …

Improving Quality of Life and Care in Lennox-Gastaut Syndrome: Best Practices for Collaborative, Family- and Patient-Centered Management

Lennox-Gastaut syndrome (LGS) affects every aspect of patients’ and caregivers’ lives, often far beyond seizures alone. Families face a fragmented system, where pediatric and adult care are poorly aligned, social services are hard to navigate, and long-term planning is unsupported. …

Personalizing Therapy in a Complex MuSK+ Patient

Generalized myasthenia gravis (gMG) disrupts neuromuscular transmission, creating unpredictable symptom flare-ups and placing a significant burden on patients with this rare condition. Most commonly associated with antibodies targeting the acetylcholine receptor (AChR), and less commonly with muscle specific kinase (MuSK) …

Optimizing Dosing & Scheduling in a Partial Responder

Generalized myasthenia gravis (gMG) disrupts neuromuscular transmission, creating unpredictable symptom flare-ups and placing a significant burden on patients with this rare condition. Most commonly associated with antibodies targeting the acetylcholine receptor (AChR), and less commonly with muscle specific kinase (MuSK) …

A CaseWise™ Initiative – Mission Possible: Matching Treatment Goals of Patients and Providers in IBD in Clinical Practice

Despite major advances in inflammatory bowel disease (IBD) management, real-world data show that many patients continue to experience suboptimal outcomes due to misaligned treatment goals, therapeutic inertia, and limited integration of novel therapies, particularly IL-23 inhibitors—into individualized care plans. While …

Team Member and Stakeholder Roles for Integrated Support of Children and Families

Supporting the evolving needs of children and families takes a powerful, connected network of clinicians, schools, community partners, and service organizations. From ensuring physical safety and basic needs through child welfare services to providing team-based guidance for children with developmental …

Trauma-Informed Care for Youth: Addressing Disparities and Adverse Childhood Experiences

Trauma-informed care recognizes that past experiences, especially trauma and adverse childhood experiences (ACEs), shape health, behavior, and well-being in powerful ways. Youth who experience ACEs, particularly those from marginalized and underserved communities, are at disproportionate risk for health, developmental, and …