Improving Quality of Life and Care in Lennox-Gastaut Syndrome: Best Practices for Collaborative, Family- and Patient-Centered Management

Lennox-Gastaut syndrome (LGS) affects every aspect of patients’ and caregivers’ lives, often far beyond seizures alone. Families face a fragmented system, where pediatric and adult care are poorly aligned, social services are hard to navigate, and long-term planning is unsupported. Younger patients with LGS are frequently misunderstood in emergency and school settings, while older patients may experience isolation and lack of access to appropriate adult services. These gaps contribute to caregiver fatigue, emotional distress, and a loss of confidence in support systems. Clinicians and multidisciplinary care teams require best-in-class education to address these gaps, meet the early and lifelong needs of individuals with LGS, and restore confidence in care.

In this CME Outfitters recorded webcast, expert faculty will explore comorbidities and quality-of-life concerns that impact individuals with LGS and their caregivers. The activity will highlight team-based strategies to support long-term planning and successful transitions from pediatric to adult care.

At the conclusion of this activity, learners will be able to better:

• Identify non-seizure features and comorbidities that may impact patients with LGS
• Integrate strategies to address QoL concerns of patients with LGS and their caregivers
• Incorporate best practices for long-term planning as part of the transition from pediatric to adult care for patients with LGS and their caregivers, including team-based, interprofessional care

This program is supported by an independent medical education grant from Jazz Pharmaceuticals.

• Pediatric and adult neurologists, rotating nurses servicing group homes and assisted-living facilities, long-term care clinicians including physicians, physician associates (PAs), nurse practitioners (NPs), and nurses
• Caregivers and patients with LGS

It is the policy of CME Outfitters, LLC, to ensure independence, balance, objectivity, and scientific rigor and integrity in all of their CE activities. Faculty must disclose to the participants any relationships with commercial companies whose products or devices may be mentioned in faculty presentations, or with the commercial supporter of this CE activity. CME Outfitters, LLC, has evaluated, identified, and mitigated any potential conflicts of interest through a rigorous content validation procedure, use of evidence-based data/research, and a multidisciplinary peer review process. The following information is for participant information only. It is not assumed that these relationships will have a negative impact on the presentations.

Dr. Douglass reports no financial relationships to disclose.

Dr. Noviawaty reports the following financial relationships: Research Support: Marinus Pharmaceuticals, Inc.; SK Life Science, Inc.; and UCB, Inc.

The following individuals have no financial relationships to disclose: 
Jeffrey Helfand, DO (Peer Reviewer)
Shirley Michelle Franks, MSN, APRN, FNP-BC (Peer Reviewer)
Andrea Edwards, PA-C (Peer Reviewer)
Keshia Pitt, PhD (Planning Committee)
Felicia Oyedepo, MD (Planning Committee)
Scott J. Hershman, MD, FACEHP, CHCP (Planning Committee)
Sandra Caballero, PharmD (Planning Committee)
Sharon Tordoff (Planning Committee)
Natalie Sanfratello, MPH, CHCP (Planning Committee)
Alison Li, MPH (Planning Committee)

Boston University Chobanian & Avedisian School of Medicine asks all individuals involved in the development and presentation of Accredited Continuing Education activities to disclose all financial relationships with ineligible companies. This information is disclosed to all activity participants prior to the start of the educational activity. Boston University Chobanian & Avedisian School of Medicine has procedures to mitigate all relevant financial relationships with ineligible companies. In addition, faculty members are asked to disclose when any unapproved use of pharmaceuticals and devices is being discussed.

In accordance with the Standards for Integrity and Independence in Accredited Continuing Education, all relevant financial relationships that faculty, planners, authors, and anyone who may be in control of content have with ineligible companies have been mitigated.

THIS CONTINUING EDUCATION PROGRAM IS INTENDED SOLELY FOR EDUCATIONAL PURPOSES FOR QUALIFIED HEALTH CARE PROFESSIONALS. IN NO EVENT SHALL BOSTON UNIVERSITY BE LIABLE FOR ANY DECISION MADE OR ACTION TAKEN IN RELIANCE ON THE INFORMATION CONTAINED IN THE PROGRAM. IN NO EVENT SHOULD THE INFORMATION CONTAINED IN THE PROGRAM BE USED AS A SUBSTITUTE FOR PROFESSIONAL CARE. NO PHYSICIAN-PATIENT RELATIONSHIP IS BEING ESTABLISHED. IN NO EVENT SHOULD INFORMATION IN THE MATERIALS REGARDING LAWS, REGULATIONS, OR LEGAL LIABILITY BE CONSIDERED LEGAL ADVICE OR USED AS A SUBSTITUTE FOR CONSULTING WITH AN ATTORNEY.

*All identified conflicts of interest have been mitigated.

Unlabeled Use Disclosure
Faculty of this CME/CE activity may include discussions of products or devices that are not currently labeled for use by the FDA. The faculty have been informed of their responsibility to disclose to the audience if they will be discussing off-label or investigational uses (any uses not approved by the FDA) of products or devices. CME Outfitters, LLC, the faculty, planners, and reviewers do not endorse the use of any product outside of the FDA labeled indications. Medical professionals should not utilize the procedures, products, or diagnosis techniques discussed during this activity without evaluation of their patient for contraindications or dangers of use.

Post-tests, credit request forms, and activity evaluations must be completed online (requires free account activation), and participants can print their certificate or statement of credit immediately (75% pass rate required). This website supports all browsers except Internet Explorer for Mac.

Call us at 877.CME.PROS (877.263.7767).

BU00-WCV-094-021226-43