Evaluation for Navigating Hemophilia: A Webisode Series on Treatment Options and Overcoming Barriers

Webisode 1: Choice, Control, and Confidence on Your Hemophilia Therapy Journey: The New Non-factor Revolution

Prior to watching this video, were you aware of how new non-factor therapies are shifting the treatment goal from merely preventing bleeds to helping people with hemophilia live more independently and with fewer medical interventions?(Required)

Webisode 2: Meet Emicizumab

Prior to viewing this video, were you aware that emicizumab (Hemlibra®) is currently the only approved non-factor prophylaxis therapy for use in all ages for hemophilia A, even newborns?(Required)

Webisode 3: Meet Marstacimab

Prior to watching this video, were you aware that marstacimab (Hympavzi™) is given as a once-weekly subcutaneous injection with a pen device, is approved for hemophilia A or B (without inhibitors), and does not require regular lab monitoring?(Required)

Webisode 4: Meet Concizumab

Prior to watching this video, were you aware that concizumab (Alhemo®) is a daily subcutaneous therapy with a pen device for people with hemophilia A or B (with or without inhibitors), providing a treatment option for those with previously limited choices?(Required)

Webisode 5: Meet Fitusiran

Prior to watching this video, were you aware that fitusiran (Qfitlia™) lowers the level of antithrombin to rebalance blood clotting, offering a treatment that can be given subcutaneously with a pen device as infrequently as every 2 months for people with hemophilia A or B (with or without inhibitors)?(Required)

Webisode 6: Meet Gene Therapy

Prior to watching this video, were you aware that gene therapy (Roctavian® for hemophilia A or Hemgenix® for hemophilia B) works by giving your body the instructions to produce its own missing clotting factor, potentially reducing the need for regular treatments?(Required)

Webisode 7: Matching Treatments to Your Routine

Prior to watching this video, were you aware that choosing a hemophilia treatment can be tailored to match your lifestyle, goals, and personal preferences instead of fitting your life around your treatment?(Required)

Webisode 8: Safety First: Balancing Risks Across Options

Prior to watching this video, were you aware that ongoing safety monitoring and individualized risk discussions are essential, including reporting symptoms, understanding the risks with new treatments, and acknowledging the seriousness of keeping any lab appointments needed for the therapy you are using?(Required)

Webisode 9: Combining Non-factor and Factor Therapies

Prior to watching this video, were you aware that switching between different non-factor therapies requires careful planning, as some medications can stay in your blood for several months?(Required)

Webisode 10: Your Roadmap to Participating in Treatment Decisions

Prior to watching this video, were you aware that shared decision-making means you play an active role in choosing your treatment based on your goals, preferences, and the latest available therapies?(Required)
14. When discussing how well your treatment plan is working for you, how well do you feel your health care professional understands and addresses your needs and concerns?(Required)