Achieving Optimal Outcomes in Patients with Narcolepsy

Dr. Bogan is the President of Bogan Sleep Consultants, LLC. He is also Associate Clinical Professor at the University of South Carolina School of Medicine and Associate Clinical Professor at the Medical University of South Carolina in Charleston, S.C.

Dr. Bogan received his bachelor’s degree in chemistry from Wofford College and his MD degree from the Medical University of South Carolina in Charleston. He served his internship and residency, as well as Chief Medical Resident, at the University of Alabama Hospital and Clinics in Birmingham. Thereafter, he completed a fellowship and assistant professorship in the Pulmonary Division of the Department of Medicine at the University of Alabama School of Medicine. He has been certified by the American boards of Sleep Medicine, Internal Medicine and Pulmonary Diseases.

Dr. Bogan has served as principal investigator on numerous clinical trials in the past and continues to do so now. He has a variety of publications and research interests that focus on topics such as narcolepsy, insomnia, sleep apnea, shift work sleep disorder, restless legs syndrome/periodic limb movement disorder, chronic fatigue/fibromyalgia and circadian rhythm abnormality.

Julie Flygare, JD, is a leading ambassador for narcolepsy and sleep, and a strong advocate for patient-centered research. She is an accomplished speaker, Stanford Medicine X ePatient Scholar, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. As President & CEO of Project Sleep, Julie leads the organization’s patient- driven advocacy, awareness, and education programs. For over a decade, she has fostered a variety of successful collaborations including bringing together 29 patient advocacy organizations to co-lead World Narcolepsy Day and launching the Sleep Advocacy Forum to elevate the sleep community’s profile on the national policy stage. Julie has lectured at numerous professional meetings across the U.S. and keynoted conferences in Ireland, Italy, Sweden, Australia, and the United Kingdom. She has co-authored papers in peer-reviewed publications and authored a chapter in a narcolepsy clinical textbook. Julie received her BA from Brown University and her JD from Boston College Law School focusing on health law and rare disease drug development. Most recently, on March 20th, 2022, she delivered a TEDx talk at San Diego State University to open people’s eyes to the importance of sleep health and sleep disorders.

Dr. Thorpy is a Professor of Neurology at Albert Einstein College of Medicine and Director of the Sleep-Wake Disorders Center in the Department of Neurology at Montefiore Medical Center, both in New York. In addition to treating patients with sleep disorders, he conducts research in narcolepsy, insomnia and sleep apnea. He is President of the New York State Society of Sleep Medicine, Past President of the Sleep Section of the Academy of Neurology, and Past Secretary of the National Sleep Foundation. In 1993 Dr. Thorpy received the Nathaniel Kleitman Award from the American Academy of Sleep Medicine, one of the field’s highest honors, and in 2012 he received the Lifetime Achievement Award from the National Sleep Foundation.

Born in New Zealand, Dr. Thorpy earned his medical degree from the University of Otago Medical School. After receiving postgraduate training in Dunedin, New Zealand; Bombay, India; and London, England, he completed his residency in neurology at the State University of New York in Syracuse and a neuroendocrinology fellowship at Albert Einstein College of Medicine and Montefiore Medical Center. Dr. Thorpy is board certified in sleep medicine.

He has published extensively on narcolepsy, insomnia, and sleep disorders. He chaired the first International Classification of Sleep Disorders and has published more than 250 peer-reviewed articles and chapters, including publications in journals such as The New England Journal of Medicine. His numerous books include “The Encyclopedia of Sleep and Sleep Disorders“, ‘ ‘Parasomnias’ (2010), ‘Sleepiness” (2011), ‘Neuroimaging of Sleep and Sleep Disorders’ (2012), ‘Genetics of Sleep and Sleep Disorders’ (2013), ‘Narcolepsy: a clinical guide’ (2016),  and ‘SleepMultiMedia, a computerized textbook of sleep medicine’ (v12).0 (2023)

Dr. Thorpy has given more than 100 television, radio, and print interviews on sleep disorders.

Terri Weaver is dean emerita at the University of Illinois Chicago College of Nursing. She is recognized nationally and internationally for her research on the effect of daytime sleepiness on daily behaviors and assessment of treatment outcomes. Her research career has been honored with many accolades, including induction into the Sigma Theta Tau International Nurse Researcher Hall of Fame. Distinguished as a leader in nursing education, Dr. Weaver was also elected in 2017 to a two-year term on the board of directors of the American Association of Colleges of Nursing. In 2018, she was named to the first class of fellows of the American Thoracic Society.

As a researcher, Dr. Weaver has been supported with funding from the National Institutes of Health, the National Heart, Lung and Blood Institute and the National Institute of Nursing Research. She has produced two notable disease-specific functional status measures, one for chronic pulmonary disorders and the other for sleep disorders. The latter, the Functional Outcomes of Sleep Questionnaire, has become the gold standard for the evaluation of evaluating the impact of treatments for sleep disorders to improve quality of life and; it has been translated into 51 languages and used internationally in clinical trials.

Dr. Weaver earned her BSN at the University of Pittsburgh and her MSN and PhD from the University of Pennsylvania. She is a fellow of the American Academy of Nursing, where she previously served as a member of its Board of Directors. Additionally, she is the Training and Education Chair for the World Federation of Sleep Research & Sleep Medicine Societies and the former chair of the national board of directors of the American Lung Association. She has also held leadership positions in the American Thoracic Society, the American Academy of Sleep Medicine and the Sleep Research Society.